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CFS/ME CFIDS Fibro Misinformation RANT Part One

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Talking about all the misinformation out there about CFS/ME CFIDS Fibro Chronic Fatigue Syndrome and the damage the misinformation causes us.

Channel: People & Blogs
Uploaded: November 30, 1999 at 12:00 am
Author: Carrigon

Length: 10:01
Rating: 5.0
Views: 176

Tags: CFS/ME  CFIDS  Myalgic  Chronic Fatigue  Fibro  Fibromyalgia  Misinformation  Coverup  

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Video Comments

Carrigon (November 30, 1999 at 12:00 am)
@deadgirldreaming There have been outbreaks of something similar on record since the late 1880's. We just don't know if it is the exact same disease, and if so, why did it suddenly become epidemic a hundred years later and rise concurrently with the AIDS epidemic.
deadgirldreaming (November 30, 1999 at 12:00 am)
You say 25 years?It was classified as a neurological disorder by the WHO in 1969. There is data on an outbreak from 1934 and it has probably been around hundreds of years under different names.I've had it since 1996. Was bedridden in dark, noiseless room for the first few and still up up back there if I try to do too much.It's hell.
MsSoSher (November 30, 1999 at 12:00 am)
@Suzanne42
Carrigon (November 30, 1999 at 12:00 am)
They killed us with the name. And the refusal for all these years to change it to anything that sounds serious. Even Chronic EBV sounded better. Anything but what they did.
Suzanne42 (November 30, 1999 at 12:00 am)
.......it's hard for us to ever stand a chance when the NAME is wrong. That's where all of the misinformation starts. A true shame.

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